How pupils with SEND are being let down by a lack of advocacy
In the battle to ensure their children are receiving the right provision, the burden of navigating the system has fallen to parents. Simon Creasey looks for a better way
When Willow Langdale-Smith’s son, Theo, was just two years old, he was on 24/7 ventilation at home via tracheostomy owing to a serious heart issue. But despite the severity of his condition, she was told that Theo was not disabled enough to warrant social care input and that he would be attending a mainstream primary school.
The trouble was, Theo’s poor health meant it was hard to ensure any plan was up to date enough to ensure his safety in school, so Langdale-Smith opted to home-educate him. Then, shortly before he turned 6, Theo underwent a heart transplant. His physical health improved ...